Are you happy for the NHS to share your private medical records with outside companies from 1st July 2021? If not, how to opt out... https://www.dailymail.co.uk/health/article-9661639/So-access-medical-records.html
Yes if it helps prevent others getting an illness. This data is absolutely invaluable to medical researchers.
It's also 'valuable' to a number of other companies Medical Researchers can already request information through various channels, this just opens it up much further. There's been some misinformation but going on previous use of our data I'm not fully convinced
After reading the article, yes, I'd be happy. Was there any particular part of the sharing that you think we shoild be objecting to?
I don’t like the fact it’s ‘ pseudonymised’ rather than actual anonymised (it can be reverse engineered to find your personal info not just mass data for research.) I also object that they aren’t making money from drug companies that will make a fortune by using it. No issue with that as an informed choice for a pandemic, for example, but as a matter of course it smacks of backhanders for access to our extremely valuable info
Has anyone been able to obtain their own records from a GP? I tried once and they were reluctant. I had an issue 20 years ago and still don’t know what the details were.
I'll go with, ‘I have no objection to the ethos behind it. But people have a right to say yes or no because once your data goes to NHS Digital, you have no say in what happens to it.' I'm in favour of using anonymised data for research but I'm not convinced data is secure once it leaves the NHS and stored on third party servers. I think they need to be more selective in who they release this information to. See 'so who will see your files?'
It's funny how everybody has Nectar cards and Clubcards who freely sell your information to all and sundry yet when the NHS utilises anonymous information for research and planning, everybody ****s their pants.
Unless it's so bad that you've had to go to the doctors, then Tesco know more about it that your GP does.
If you sign up to NHS on line, your medication and test results go on there Ah, so that's the herd immunity I've seen written about.
You can get most of your medical history online, just sign up to Patient Access. I get my repeat prescriptions through this also. https:/patientaccess.com/Account/Login